Choose Compassion

June 4, 2008

Sometimes life presents us with opportunities, but we have a choice as to how we respond.  Will we choose compassion or contempt? 

I received this beautiful email this week from my friend PPPJ and share it with her permission.

 

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Hi there Goldie!

I was sitting on a plane down to Phoenix AZ in the window seat.  A 91 year old woman was next to me, and next to her was a 40 something professional looking woman named Diane.  We all chatted pleasantly about the previous mother’s day activities, and the older woman was telling us about her children.  The plane took off and we all shut our eyes for three seconds.  Suddenly, a child became screaming.  She was SCREAMING.  She was in the seat in front of me.  We all looked at one another and shrugged.  This was going to be our flight.  So, we took out our books, and magazines, and immediately felt sorry for the child.  Her ears must have been hurting.  She looked like she was about three when I peeked at her when we sat down

The screaming continued

We were trying to decide what the child was saying.  It sounded like “potty” or something like that, and Diane and I were getting worried for this child’s welfare.  I tried to peek between the seats without any luck.  It seemed that the mother was restraining the screaming and crying child – and she would rest for a few minutes before starting up again, so we couldn’t tell what was going on with this little family.

The screaming continued.

Passengers began to turn around and give the seat in front of me dirty looks of exasperation and frustration.  People were talking about it, and the plane was full and no one could move away from the screaming child.

I stood up and had to lean over the seat to look at this child’s mother, and there were tears streaming down the mother’s cheeks.  I asked her if she needed a break, and that I have three kids at home, and I know how hard it is if she would like a break.  The child didn’t look at me. 

The mother looked at me with more tears and said in English (which was not her first language), “please…tell people…my daughter is autistic…there is nothing I can do……”  so I offered the mother water, and she declined.

I felt that I was staring into you.

Then I started to get angry.  Who the heck do these passengers think they are that they give HER dirty looks?  When I went to sit down the angry eyes were all on me, and I told them all in an angry voice, “Read a book.  The child and mother will be okay.” 

Suddenly, the passengers around me went from being angry to being curious – what was wrong?  Should the captain know?  I explained it was a medical condition, and the child was safe and would be okay, but they should stop staring.  Surprisingly, they did.

The crying and screaming continued for another 45 minutes, and then miraculously the child and mother fell asleep.  We all breathed a sigh of relief.

Goldie, I couldn’t stop thinking about you.  How many times have YOU been in a situation like this when you just needed someone to help just a little bit?  I kept wondering what would help, and I did give the woman tissues.  I did offer help, but she didn’t want my help, and was doing the best she could.  I wish I knew Spanish so I could have helped more! 

It really opened my eyes to your situations, and I appreciate you starting this blog so I was sensitive to the family right away.

Thank you.

Sincerely,
pppj

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

 

Wow.  I just… wow.  And there I go crying again.  This email touched me so much and evoked so many complicated thoughts and emotions.  I find that words are failing me right now.

First of all, PPPJ, thank you so much for taking the time to share this with me.  I can tell that you truly were a blessing to this woman.  You DID help, even if you don’t think so.  I know that your kindness and compassion were a relief to that dear mother. 

That poor mother.  When I read, “I stood up and had to lean over the seat to look at this child’s mother, and there were tears streaming down the mother’s cheeks,” I began to sob, and continued to do so while I read the rest of the story.  While I have not been in a situation this extreme I can still relate to her helplessness.  I felt so sad WITH her.  Many times I have been terrified and exhausted by the actions of the screaming, twisting child that I was trying so desperately to hold in my arms.  It is made worse when I can feel harsh eyes of judgement upon me.  I have written about it more than once.  I just want to yell at them, EXPLAIN, ask them not to judge.

And that is what PPPJ did.  She helped diffuse the situation by giving the other passengers a lesson in compassion.  She helped them realize the error in their hasty judgements.  She snapped them out of their self-righteous indignation and made them aware that it was NOT simply bad parenting or an unruly child… that poor child.  She must have been so terrified and frustrated by the experience of riding on a noisy airplane in a confined space.

I know why the mother seemed to refuse any of PPPJ’s offers to help.  Besides tissues and comfort there was not much else that would help except time.  The child needed time to be allowed to calm herself down, and the mother needed to hold her baby tight (no hands free for water)  and comfort her until the storm had passed.  If anyone else had tried to hold the child she likely would have found that even more upsetting.  Plus the child was at risk or hurting herself or other people, so it was safest for her to be with Momma.

How many times have I wished, when my Percy was putting on a show for the public, that someone would show me some kindness and understanding?  It would have helped me hold my head so much higher if just one person had looked at me and said soothingly, “I know, kids act this way.”    Or if they would simply NOT be impatient when they were stuck behind me in the checkout line and I was taking WAAAY too long because my children were upset and I was trying to keep Percy from taking his aggression out on his older brother’s flesh.  Or maybe if they just held the door for me and helped me with my bags because my child was grabbing the doorframe and refusing to leave.  And you know what, sometimes people have done those things for me.  And I was INCREDIBLY grateful.  So on behalf of your new friend on the airplane, PPPJ, let me say a heartfelt “Thank you!”  

PPPJ wrote, “I appreciate you starting this blog so I was sensitive to the family right away.”   That makes me feel all warm inside.  And humbled.  I started this blog for several reasons, like needing a place to express myself and sort out my thoughts.  I am still so tickled and amazed that out of those semi-selfish motives good things are happening.  People are THANKING me for venting my frustrations online because they can relate and they realize they are not alone.  Wow.  I HOPED that by being real about the ups and downs of my parenting experience and Early Intervention journey I could maybe help other people.  I knew if I helped even just one person I would be happy.  And now I am happy.  So very happy.

But I also know PPPJ well enough to say that I think she would have helped this woman even if she had never read my blog.  She is just like that.  So thank you again, PPPJ, for being the kind person that you are.  You chose compassion.  Good choice! 

Entry Filed under: Autism Spectrum Disorders, Blogging, Deep Stuff, Parenting, blessings, children, special needs. Tags: , , , , , , , , , .

19 Comments Add your own

  • 1. asdmommy  |  June 4, 2008 at 12:45 pm

    OH did that make me CRY! I have so been in that exact situation, and just wanted to scream at people who were saying things like “Most people give their kids benedryl to calm them on a flight” or “Why don’t you try some gum” or just giving me dirty stares. And I wanted to cry too. I know some of them were pretending to be helpful, but the suggestions were made with such disdain instead of compassion that I knew they just wanted my kid to shut up. I was thankful my son looked significantly younger than he was and hoped that allowed us some leeway. Yet then I’d be annoyed with myself for even caring. We have a flight coming up again in a few months…eeek…thanks for sharing this story.

    Reply
  • 2. Goldie  |  June 4, 2008 at 2:02 pm

    Hi and welcome! Don’t you HATE that? When they say, “Do you need help…” and you know it means, “So your kid will shut the heck up?” I made the point to PPPJ in an email that we can usually tell people’s intentions in situations like this and than I am sure the mother could tell PPPj was offering help out of KINDNESS.

    You wrote, “I’d be annoyed with myself for even caring…” me too. I have been told to ignore them, but that’s easier said than done. Especially when your eyes are so full of tears that you can’t see straight and you know everyone is watching you.

    I will pray that your flight goes well. We have family trip coming up and I am nervous. MY OT told me that we need to clearly explain to Percy what we will be doing ahead of time and show him pictures before we go to help him prepare for it. maybe that will help you!

    Reply
  • 3. Goldie  |  June 4, 2008 at 2:27 pm

    One more thought. Some people have been complaining lately that parents of children with autism or other behavioral concerns let them act however they want, and take them places where they will be a disruption and don’t care. Well, I admit that sometimes I am so tired I do not try and discipline my son as well as I should and I HAVE been too permissive at times. But sometimes he WILL NOT be controlled, period. Yet I keep trying, and will try harder.

    Also, I usually try and avoid situations where he will be a disruption or a danger to himself or others. We don’t do restaurants. We can’t go to parks with water. We have had to avoid lots of fun things I would like to do. I do this out of respect for other people as well as trying to protect my son. BUT I can not also keep him at home in a bubble. We must find ways to patiently and lovingly incorporate into our society children who are different and whose behavior may be deemed as “inconvenient”.
    Sometimes life is inconvenient. The reality is that children with autism and developmental delays are also a part of society and have the right to exist freely. But I personally try to exercise that freedom while also respecting the rights of those around me. I hope that they will give me the same courteous consideration.

    Reply
  • 4. fightingwindmills  |  June 4, 2008 at 2:46 pm

    That was beautiful PPPJ! Thanks for letting Goldie publish that personal email. It was so very worth sharing!!!

    Reply
  • 5. pppj  |  June 5, 2008 at 9:48 am

    Thanks everyone. It was amazing to me how sad, distraught, and GUILTY this mother looked through no fault of her or her child’s.

    I thought about it, and it took a while to write it. How do you all blog every day?

    Reply
  • 6. asdmommy  |  June 5, 2008 at 1:15 pm

    Goldie – I know what you mean about people complaining about our kids’ behavior, and our handling of it. Like you, I have always been very sensitive to other people – to the point of staying home probably far more than we should. But we’re getting better, although we still don’t do restaurants.

    Good luck with your upcoming flight too.

    And pppj, thanks for reaching out. I’m sure that Mother is more grateful than you know!

    Reply
  • 7. highhopes1  |  June 5, 2008 at 3:04 pm

    My heart goes out to any mother who has a child who is upset. My dd when we flew up to visit my folks was absolutely terrified and nothing absolutely nothing I could do would console her. She was 3 1/2 at the time.

    I’m like you, I offer to really help and then if that help is declined I say a prayer. I think sometimes people may just be grateful to know someone else understands and is on their side.

    Reply
  • 8. Goldie  |  June 5, 2008 at 3:22 pm

    VERY worth sharing, FW!

    PPPJ, I don’t blog every day… and when I do my house looks tornado-esque.

    Thanks, adsmommy, although we will be driving, but still…hotels, car trips, CHANGE in routine *gasp*.

    “I think sometimes people may just be grateful to know someone else understands and is on their side.”
    HH, I think you’re right. Yuck, sorry you and DD had such a bad experience! poor thing(s).

    BTW, the name of the rose in the picture is COMPASSION. I thought that was an appropriate metaphor.

    Reply
  • 9. Ace  |  June 6, 2008 at 4:28 am

    When I was small, my younger sister was severely autistic. She’d scream and writhe whenever we went out, but of curse you can’t just leave a small child out when you go grocery shopping, can you? So we’d go out, my mother struggling with this demonic child, and trying to stop the older one from wandering off or stealing green beans from the vegetable section or whatever.
    Where ever we went, we got stares, and glares and angry mutters. Butsometimes people would come up and abuse my mother, filthily, angrily, using all kinds of language. Either they were all “why don’t you discipline your kid! She’s a brat!” or else they were “oh my god, what have you done to this poor kid?” They’d tell her what a bed mother she was, yelling abuse. Sometimes Mum tried to explain that my sis had autism, but either it’d be “you’re just a bad mother!” or “you’re just using that as an excuse!”
    I remember, never being able to understand who these people were who came up and abused my mum. We had a hard enough time just trying to manage my sister. Why were they blaming my mum? What did she have to do with how my sister behaved? They didn’t know us, what gave them the right to do that? And meanwhile the closeness of strangers and angry voices would send my sister more and more out of control. My mum would cry, and I never knew what to do. They condemned her knowing nothing of our situation. I was only small, but I sitll remember. We were all on our own, with no help.

    Reply
  • 10. Ace  |  June 6, 2008 at 4:30 am

    I still don’t understand why people are like that, why they react this way. And when everyone is like that, everywhere you go, you become so isolated and hard and despising of humanity. My mum was brilliant, but she copped so much flak.

    -
    I am not hip, but I am assuming “copped” means received? poor mum. I don’t understand either, but there ARE good people in the world. I feel sad that your family encountered many of the not so good ones. I really appreciate your sharing these personal expereinces with us.

    Reply
  • 11. Goldie  |  June 6, 2008 at 6:55 am

    Good morning Ace. What a pleasure to wake up to your insightful comments. Well, except that the stories of what your family experienced leaves my hands shaking with anger and my stomach queasy with disgust at how horrible the human race is capable of acting. I can’t BELIEVE that!!!!! Ugh!

    Do me a favor, if you are able. Give your Mum a big hug from me, okay?

    When I see scenes like that in the store and I know there is nothing I can do to physically help I usually try to get the parent’s attention- no easy task because usually they are carefully avoiding eye contact- and I smile at them and say something goofy like, “Don’t you just LOVE these days?” That way they know that I am not upset and hopefully they feel better. Honestly sometimes half the stress is for ME in those situations is worrying that I am causing other people’s blood pressure to go up. It IS stressful for EVERYONE, but as you pointed out, unavoidable sometimes.

    Reply
  • 12. Goldie  |  June 6, 2008 at 7:28 am

    I found this little gem in an article by Lisa Kogan on Oprah.com called “Men in Speedos and prettifying the ugly stuff”

    http://www.cnn.com/2008/LIVING/personal/06/05/o.kogan.tells.all/index.html

    4. I’d like to say a few words to every crabby traveler who responds with disgust whenever a baby cries on an airplane. Perhaps you don’t know how babies work, but there’s been a study, and it turns out that giving a 4-month-old the stink eye doesn’t actually accomplish anything. Either have a little compassion or a little Ambien.

    Reply
  • 13. pppj  |  June 6, 2008 at 9:55 am

    …and to every crabby travel in coach who is mad about a baby or a child who can’t behave…pay for a first class ticket or be quiet!

    Reply
  • 14. High Hopes  |  June 6, 2008 at 11:55 am

    Ace – I am sorry there are so many ignorant people out there and your mom took abuse at their hands. It makes me crazy. We have a lack of compassion, empathy and gentility in our society today. Somewhere along the line we have lost our basic respect for each other.

    I’m with Goldie, give you mom a hug.

    Reply
  • 15. Goldie  |  June 7, 2008 at 8:09 pm

    amen, PPPJ!

    HH, I like what you said, esp- “Somewhere along the line we have lost our basic respect for each other”… YEAH!

    I saw this article that details “Surviving a flight with your baby or toddler”. It is more for neuro-typical children, but it still might be helpful.

    http://www.cnn.com/2008/TRAVEL/traveltips/06/06/flying.with.babies/index.html

    Reply
  • 16. motherofconfusion  |  June 10, 2008 at 9:11 am

    Oh that made me tear up too. Amazing how one person being compassionate and understanding can change the attitude of a plane full of folks.

    Thank you for sharing this link with me.

    BTW, I added your RSS to the autism bloggers. I’ve recently installed wordpress on my own server and am able to add the javascript for the widget — it seems that WordPress.com doesn’t allow for that kind of modification. Do you know what it will accept in the sidebar? Does it have an RSS widget/plugin available?

    (BTW, in case you haven’t read it in another post, I just yesterday made the jump to another blog url -last jump I swear ;)http://www.motherofconfusion.com. All new posts will be there. The other url will forward soon.)

    Thanks for participating in blogging for autism awareness :) :)

    Reply
  • 17. thecanvasgrey  |  June 10, 2008 at 2:33 pm

    Wow! Just wonderful! Compassion spurred compassion. Thanks PPPJ and Goldie for sharing! Debi

    Reply
  • 18. Goldie  |  June 20, 2008 at 7:32 am

    MOC, thanks for coming over and also for bringing so many bloggers together.

    CG, glad you liked it!

    Reply
  • 19. Diagnosis Autism « My Platypus Life  |  August 21, 2008 at 9:32 pm

    [...] to fend off busy-bodies.  I wrote down the name of my blog and asked her to please read the post “Choose Compassion”, because I knew she would appreciate the story of a mother struggling alone on a airplane with [...]

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