“Can you get rid of me?”

April 11, 2008

That is what my oldest son pleads when he is frightened and feels the need to hide.  “Can you get rid of me?”  It would be cute if it wasn’t so heartbreaking.  We were at the playground on one of the first truly beautiful days this spring.  A week’s worth of rain had finally ended.  Yaay!  Outside!!!!  We had slides and a friend and it was perfect, so I thought.  But then Thomas saw a beetle and it was all over.  His eyes grew HUGE and he sucked in his breath and he whimpered “Can you get rid of me?”   Keep in mind, he has NEVER been harmed by a bug.  I have not taught him to be afraid of bugs.  But afraid he is, deeply, instinctively, debilitatingly.   Sometimes he is so carefree and energetic and outgoing and enthusiastic.  Other times… -sigh-.  Recently he refused to go play outside with his friends on a playdate because there were bugs.  Sometimes he won’t go outside because there MIGHT be bugs.  This time he covered his ears, curled up his legs and cowered on the park bench next to me, refusing to move. 

I finally coaxed him to enter the playhouse with me, but all he did was sit on my lap while searching for bugs.  Then he cautiously walked to the swings with me while I swung Percy.  Unfortunately a large wasp-like creature flew right by his nose (Why, God, WHY?!) and I knew it was time to go home.  My poor Thomas again gasped and gaped and covered his eyes.  He looked so fragile, standing in the middle of the swings hunched over, paralyzed, covering his eyes in his terror.  I hugged him and tried not to cry.  I needed to be strong for him, but inside my heart was aching. 

“Is this normal?”  I asked two other mothers, searching for answers and comfort.  “Is it normal for children to get so afraid to the point that it is this disruptive?”   I think questions like that make some mothers uncomfortable.  What are they going to say?  ”You’re right, your child is not normal.”   One said, “I think it is important that they don’t see YOU freaking out.”  She’s right, but I already knew that.  I try so hard to avoid transference, to not to let my son see me afraid for him.  My friend responded, “I think she does a great job of not freaking out considering her circumstances.”  I could have kissed her. 

I know children deal with anxieties all the time, but I am thinking that when those anxieties disrupt normal activities to this extent it is beyond typical.  I feel so helpless.  I have tried to encourage Thomas to deal with these fears but he seems crippled.  It must feel so overwhelming inside his little mind.   I am not sure how to proceed, and I still am not sure if I even need to seek help.  IS this normal?  Will he just grow out of it?  I asked Percy’s Occupational Therapist about it and she said that the school system’s Preschool Services doesn’t deal with these sorts of issues.  He is over 3 so he is out of the Early Intervention phase.  I wish now I had gone ahead and had him evaluated by Early Intervention when I first started having concerns.  At least that would have been a place to start.  The school system is so overwhelmed now anyway… it is a much slower process than EE.  I worry that if he deals with this many compulsions and anxieties NOW it will even worse when he is older.  I had mild anxiety issues as a child but didn’t have real struggles until adulthood.  I worry about how this will affect his life.  I worry.  I worry all the time.  But I try so hard not to pass that worry on to him.  I honestly don’t think that he has picked up these fears from me.  I think they simply come from some deep place inside him.  I wish I could just reach down inside and fix it.  I wish I could get rid of it.  I wish I could rescue my little boy. 

We are in this together, buddy.  And no matter what, I will NEVER get rid of you.

Related: Going out in public with my sons

Entry Filed under: Autism Spectrum Disorders, Parenting, children, family. Tags: , , , , , , .

27 Comments Add your own

  • 1. deepsm25  |  April 11, 2008 at 8:44 am

    Heart renching…I can totally understand. Hopeful, that as he grows older, he will eventually fall out of his anxiety and also realise how strong his mom is from within. :-) Guess, with time, things always fall into place.

    I hope so! Welcome, and thank you for the compliment!

    Reply
  • 2. fightingwindmills  |  April 11, 2008 at 1:36 pm

    In our music class we learned the song “Shoo Fly” so we sing that if a bee or fly comes near us. You swish your hand through the air and stomp your foot as you sing “shoo fly don’t bother me, ’cause I belong to somebody.” I don’t know if you want to try that with your sons?

    My son says, “bugs scared.” I affirm that I know he’s scared and that it’s a valid fear, but I then I tell him flies don’t hurt us. I also try to emphasize that bugs belong outside and we have to tolerate them. I’m sorry that your son is so anxious about it. I hope he gets to the point where he can enjoy being outside and playing in the park. If he’s just focusing on the bugs and not seeing the potential for fun, you are right about that being debilitating.

    Would it be too much to confront the problem by studying bugs? Like a nature book geared toward children that explains how interesting they are?

    Reply
  • 3. Goldie  |  April 11, 2008 at 2:10 pm

    “Would it be too much to confront the problem by studying bugs? Like a nature book geared toward children that explains how interesting they are?”

    Good idea, FW! I will get some books and videos to take away their mystery and desensitize him. I have tried explaining to him that he hasn’t been hurt yet by a bug but that didn’t work.

    Today we went to a friend’s but had to go inside because he was afraid and covering his ears and not playing. And there was even a new swingset and a trampoline! He had never been on a trampoline so the novelty kept him distracted for 5 whole minutes, but then he was afraid again. I don’t like those things anyway, but I was willing to try it if it would help him not be afraid.

    Reply
  • 4. highhopes1  |  April 11, 2008 at 3:26 pm

    Goldie, in your fourth paragraph you mention having your son evaluated. It may be a worth while path to go down. It sounds like this fear is paralyzing to him – which sounds more than regular bug anxiety. Does he become as anxious over other things?

    Try reading stories and getting him interested, but I definitely would mention this behavior to your doctor.

    Here is a cute book about a fly it’s call Shoo Fly Guy! by Ted Arnold. It is a hoot.

    Reply
  • 5. Goldie  |  April 11, 2008 at 3:39 pm

    Sadly, yes, High Hopes. So many things frighten him. I have tried on my own to do some therapeutic work— I validate his feelings while trying to encourage him to try and overcome his fears. I want to challenge and not coddle him, but I also respect his boundaries. But it seems to be getting to the point where it is beyond my ability to help him and his fears are getting more disruptive. Recently they were studying “Jonah and the Big Fish” in preschool and he got so terrified that he had to leave the room until the story was over. His teacher was so concerned.
    I guess it is time for me to get help for him as well. I am not sure where to start. Do I go to a psychologist or a pediatric neurologist? I am leaning toward the latter.

    I really appreciate your special effort into helping to encourage and even educate me! Bless you.

    Reply
  • 6. highhopes1  |  April 11, 2008 at 4:00 pm

    We all know it is normal for kids to have fears. Sometimes the fears are overwhelming and overpowering.

    I am not sure how your system works, I can only speak about where I live in Canada. Generally when you need to see a specialist of any sort in the Province that I live in you have to be referred by your family doctor/pediatrician. So first thing is first go in and see your doctor and have a frank discussion about both of the boys. Has Percy had any formal testing to actually diagnose him with autism? It sounds like he has seen a pediatrician and has gotten some OT.

    In some families they are investigating the sibs if there are symptoms being exhibited.

    It sounds like emotionally you are doing the right thing for him with bug phobia, but it is always good to have professional intervention particularly if it is getting to be an enormous problem, because if it is overwhelming to you, it is extremely overwhelming to him.

    I would definitely start with a pediatric neurologist, they will rule out any organic stuff first and then generally refer you to the proper ancillary specialties/treatments i.e. psychology, etc.

    This is breaking my heart Goldie, I just want to encourage you strongly and be support for you, please let me know if there is anything I can do to help.

    Reply
  • 7. widdleshamrock  |  April 11, 2008 at 4:13 pm

    Firstly HUGE hugs.

    I thought I was reading a day in our life for a moment. There are so many similarities.

    My older son had MAJOR anxiety issues and still chews on things for comfort.

    I can not add to the wise words here. Just know that in the one post I have read of yours, I empathise, I walk a similar path and I think you are an amazing mother.

    Light and love.

    Welcome, Widdle. Your comments and presence are much appreciated. I am glad that in this world of technology we can find each other and walk down this path of the unknown together.

    Reply
  • 8. Goldie  |  April 11, 2008 at 4:25 pm

    geez, hh, you are making me cry.

    we are past the pediatrician stage. we need a specialist. Percy has been evaluated by an Occupational Therapist and Speech Therapist and they have identified the developmental delays. they do NOT give a diagnosis. For that I need a Developmental Pediatrician or Pediatric Neurologist. I think I will go with the Neurologist. For BOTH boys. -sigh-

    If anyone else is having trouble deciding the next step this link might help
    http://autism.about.com/od/medicalissuesandautis1/a/whodxasd.htm

    Also, I just added one more line to end of the main post. I think it was necessary.

    Reply
  • 9. pamela baker  |  April 11, 2008 at 4:53 pm

    My son had fears galore. We took him to Disney world and he would cry at the thought of getting on any ride. (This may not seem so odd for a young child but he was 10) We had taken a combination of herbs and vitamins with us and by mid week, the fears began to subside.
    .
    You can do all the logical things, and what will work for so many people, may only become frustrating to you.

    The other thing was the word no. I could never only tell my son one or two times no. I could say no over and over explain why resort to time out, go to other activities and on the next day he would wake up and still be on the issue.

    I had never seen this before and this was my third child and i had been in daycare and children’s church work for many years.

    Your post is excellent I will be checking back,my next one will be this Tuesday. The more we all share, the stronger we will become.

    Thank you! Your blog is so informative and interesting! My next post will be on Music Together. I had started it this afternoon and then saw that you were also writing about music therapy. I hope to post it tomorrow. I am waiting to see if our teacher wants to add anything. And here’s to sharing and strength!

    Reply
  • 10. Darla  |  April 11, 2008 at 5:07 pm

    Goldie my heart goes out to you. Anxiety SUX. I’m just going to take a wild guess here and bet that you are more “afraid” (as it were) than he was.

    He was afraid for the moment, you are afraid for the big picture.

    Bless your heart. This is a tough struggle for any parent.

    Yes, I am afraid of how much he might have to struggle in life. Thanks for understanding.

    Reply
  • 11. highhopes1  |  April 11, 2008 at 6:26 pm

    Goldie – I did not mean to make you cry. My heart is breaking over the frustration you are feeling and the lack of support that parents have when trying to find answers for their kids. It makes me angry that medical personnel see parents struggling and some never seem to take the next step in helping them sort through it all. I have been in this situation with my daughter’s asthma and it was only through perseverance that we saw a respirologist and now have a workable plan with her asthma.

    You are doing all the right things. You are a good mom and your boys know the love in your heart.

    Reply
  • 12. thecanvasgrey  |  April 11, 2008 at 9:04 pm

    “I validate his feelings while trying to encourage him to try and overcome his fears. I want to challenge and not coddle him, but I also respect his boundaries.”

    What a gift you are giving him!!! Many moms just quit or coddle.

    Have you noticed if it is flying bugs or buzzing bugs or just any bug because my son has super human hearing (I say like superman for fun)? Please take heart that in time and with therapy he can learn to adjust some of his anxiety. My son has just completed his fourth fire drill (the alarm hurts his ears) without anxiety and boy is he proud. The fire alarm goes off, he gets his ear phones and out he goes without screaming or crying. It was a wonderful day at the school, teachers, students were so happy (we celebrated at home).

    My son also has a high aptitude for the computer. If your son does I have some sites you may be interested in.

    I’m so glad so many have responded to you. You are fortunate to have a net growing around you. You will also (hopefully) find a good strong net in your local schooling system. Some communities also have government sponsored (city, county) Mommy and Me or assessments they can give your child for delayed speech or abilities. That was the catalyst for me and it was all free.

    Debi

    Sometimes I want to quit.
    how exciting for your son to have such breakthroughs! his plight sounds familiar. my son is terrified of loud noises too. he is also very good on the computer…he could use a mouse by age 2 & 1/2. any site reccommendations would be appreciated. what is Mommy & me?

    Reply
  • 13. highhopes1  |  April 11, 2008 at 9:22 pm

    Goldie,

    Please go to the coolchicks blog, I have written something for you.

    Reply
  • 14. Goldie  |  April 11, 2008 at 9:44 pm

    They were GOOD tears, High Hopes. I was just so overwhelmed by the amount of time and effort and emotion you put into helping me today. Your compassion was deeply touching. Thank you from the bottom of my heart.

    And as far as your poem, that was even MORE moving. Wow. And you said you would never post your poetry! How beautiful. I feel honored and humbled and oh so grateful.

    If anyone else wants to read it
    http://2coolchicks.wordpress.com/2008/04/12/a-mothers-heart/#comment-633

    Reply
  • 15. highhopes1  |  April 11, 2008 at 10:05 pm

    I am honored and humbled to be able to help.

    “Sometimes I want to quit.”

    I think we have all been there when it comes to health or learning issues with our kids. You know when you get to that point, you will have a breakthrough and things will turn around or your wee one will come in and smile at you and it will recharge your soul. Just remember the strength in your heart it will carry you through a lot.

    You and your boys will be in my prayers.

    Hugs

    Reply
  • 16. Goldie  |  April 11, 2008 at 11:10 pm

    I am overwhelmed by the responses of so many people so far, old friends and new. It reminds me how many good, caring people there are in the world. I know that what you are reacting to is not just my story, but also the unspoken stories of all children suffering with some sort of developmental concern or neurological disorder. We can all support and encourage each other. As Pamela Baker said above, “The more we all share, the stronger we will become.”

    and now I REALLy need to go to bed…

    Reply
  • 17. Fe  |  April 12, 2008 at 2:46 pm

    Oh Goldie, I really feel for you and your son. It’s always so difficult to know what the way forward is. I can’t really offer much in the way of advice but I wanted to send you hugs and I hope that you find a way to help your son deal with his anxieties soon.

    Fe x

    Reply
  • 18. highhopes1  |  April 12, 2008 at 7:30 pm

    Goldie,

    You know what is so amazing to me in this electronic age? We make friends on the internet, we put our struggles out there in hopes someone will give us answers or paths to take, and it truly does happen. Eventhough we are strangers coming together we have a common bond, loving our kids and wanting the very best for them. I think it is pretty amazing that we can share, learn and grow from our shared experiences.

    Remember that you always have people rooting for you, even when you feel the burden is too great to bear. Just come share and we will be here.

    Many hugs to you!

    Reply
  • 19. Goldie  |  April 12, 2008 at 10:05 pm

    Thank you, Fe. I get so excited every time someone new stops by this blog. I truly appreciate you taking the time to help encourage me.

    You are right on, High Hopes. It is amazing to me that I have the means to vent my frustrations and worries and simultaneously help/encourage other people AND make new friends. wow.

    You know, all parents have some sort of struggles. Actually, EVERYBODY has struggles. We all have burdens to bear and it is wonderful when we reach out to one another in understanding and support.

    Reply
  • 20. Goldie  |  April 12, 2008 at 10:13 pm

    Thomas had a great day today. I took him to an arts event and gently insisted that he listen/watch an African Drum & Dance performance. Even though he was intimidated he still watched (with his hands in his mouth of course. that is what he does when anxious) and he did not cry!!!
    He also played outside a LONG time! Yaay!

    I will say something that really upset me. There was a juggler/magician today and I recalled that his juggling is better and more interesting than his magic & bad jokes. I know T has a limited attention span so I asked the juggler what he was doing first, gently stating that my young son has a hard time understanding magic tricks. he said he would do juggling first but then when his show started did 10 min of magic first. that was fine, it’s his choice. the problem was that he looked at me in front of the whole crowd and said, “I will get to the juggling soon” and made some crack about us having ADD issues. It cut me so very deeply. It was so inappropriate. People just don’t realize how much insensitive remarks like that can hurt.

    Reply
  • 21. highhopes1  |  April 13, 2008 at 3:37 pm

    Aww Goldie, never mind he was a jerk and I bet he has struggles in his own life because of his attitude.

    On the bright side T had a good day and played outside and enjoyed his time out with his mom!

    Reply
  • [...] the bathroom and you have to hold your son on your lap to do it.  Plus Thomas struggles with some anxiety and his own OCD tendencies  and I spend a large amount of time helping him arrange his universe “just so” or he [...]

    Reply
  • [...] out on one of the joys of childhood, birthday cake, because of his anxieties (for more on that see “Can you get rid of me?“).  He loves chocolate, but won’t even eat brownies!  Ahhh, the joys of parenting [...]

    Reply
  • [...] has slowly begun to conquer his anxiety problems.  He is now able to eat foods that are “broken”.  It used to be I had to search the [...]

    Reply
  • 25. The Time Has Finally Come « My Platypus Life  |  August 19, 2008 at 6:47 am

    [...] past month he has regressed and his issues are now MORE disruptive than Percy’s (See “Can you get rid of me?”).  In a brief visit recently with my brother he said if I had asked, “Which one of my [...]

    Reply
  • 26. I had FUN at the beach! « My Platypus Life  |  September 4, 2008 at 2:50 pm

    [...] fearful Thomas having so much fun in the midst of a potentially frightening situation.  The anxiety that so often plagues him seemed so far away.  Little Percy was also so happy, so engaged, and he seemed anything BUT [...]

    Reply
  • [...] upset.  If I do something WRONG he will cry for a REALLY long time.  Really.  LONG.  He also struggles a bit with anxiety.  Basically, he has a head start on [...]

    Reply

Leave a Comment

Required

Required, hidden

Some HTML allowed:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <pre> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Trackback this post  |  Subscribe to the comments via RSS Feed


Recent Posts

Awe & Angst, Ranting & Rejoicing

Recent Comments

widdleshamrock on Trains, trains, & MORE…
Randomability on Trains, trains, & MORE…
Mikee on Trains, trains, & MORE…
Trains, trains, … on Silence is not always gol…
worried mom on Occupational Therapy- Visits 1…
gr8tful on 5 signs your family watches to…
widdleshamrock on STRAW Fail
robbin eicher on More Sunday Comics

Blogging for autism awareness? Join us

Category Cloud

Autism Spectrum Disorders Bargain shopping blessings Blogging children Chocolate Deep Stuff Early Intervention Faith family for laughs Fun Stuff Holidays Identity Lost Marriage media stories Music Parenting random special needs The Platypus TV Uncategorized You Tube

Platypus Power!

Archives

Contact me! life.as.a.platypus@gmail.com All text is © COPYRIGHT My Platypus Life

Today's Top Posts

The days of a mother are long, but the years are very short...